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Diagnosis


Symptoms & Diagnosis

Your child may have a range of signs and symptoms leading you to seek a medical evaluation. After the evaluation your physician will likely order a CT or MRI scan.

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Initial Questions

With an aggressive disease like DIPG or DMG, decisions need to be made quickly. We can offer suggestions on some of the key questions to ask your medical team.

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Second Opinion

A DIPG or DMG diagnosis comes with difficult treatment decisions that need to be made quickly. Getting a second opinion from a medical center that specializes in DIPG and DMG tumors is highly recommended.

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Biopsy Considerations

Medical professionals who specialize in DIPG and DMG believe biopsies are a helpful tool to inform treatment. Tissue samples from the biopsy help to determine the best possible treatment options for the patient.

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Steroids

Steroids may or may not be prescribed for DIPG or DMG after first being diagnosed to help manage symptoms. It is important to consider the pros and cons before making a decision.

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Parent-to-Parent Advice

This program was created by families who have walked this path before you. As some parents have reflected on their own journeys, they wanted to provide recommendations for you to consider.

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