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You are not alone.
Get one-on-one support from a DIPG/DMG Nurse Navigator

With years of experience in pediatric oncology, our nurses will directly help you better understand the diagnosis and treatment options, connect you to the proper resources you need, and support you any time throughout your family’s entire DIPG or DMG journey.

Get support from nurses who understand DIPG/DMG and the journey families face.

Our dedicated DIPG/DMG navigators are here to help (available in the United States only)Some of the ways we can help include:

Explore treatment options and other decisions

Connect you to DIPG and DMG medical experts

Understand what’s happening and what to expect

Be a sounding board whenever needed

How the My DIPG Navigator program works

We know you are overwhelmed. We want to make it as simple as possible for you to get the help you need, when you need it, at any time throughout your DIPG or DMG journey.

Request Help

Provide basic contact information so one of our navigators can connect with you.

Receive a response within 12 hours

One of our navigators will reach out to you to learn how we can help.

Get connected with resources

Your navigator will connect you to experts that specialize in DIPG and DMG, as well as other helpful resources.

Receive ongoing help

Your navigator will help educate, connect, and support you throughout your family’s DIPG or DMG journey.

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About DIPG (diffuse intrinsic pontine glioma) and DMG (diffuse midline glioma).

Regardless of your diagnosis, we want to help make sure you have all the information you need.

What is DIPG/DMG?

Learn the basic facts about DIPG and DMG tumors.

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What do we do now?

Expert advice on first steps after a DIPG or DMG diagnosis.

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How do I navigate my journey?

From diagnosis to treatment to managing side effects, we are here to help.

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Are there other support services available?

Many organizations want to help meet your needs, including financial, travel, and emotional support.

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About Us

ChadTough Defeat DIPG Foundation is honored to offer this program to families in need on behalf of our founders, our Family Partners, and My DIPG Navigator Partners.

No family should ever have to find their own way through a DIPG or DMG diagnosis. We know because we have already taken the journey.

This navigation program stems from the vision of DIPG hero Jace Ward, who was passionate about ensuring all patients had quick access to the most current information about best practices and treatment options.

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Take the first step towards personalized one-on-one support