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Chad Carr

September 26, 2010 – November 23, 2015
Diagnosed: September 23, 2014

Chad Carr

Chad Carr was a precious, beautiful, fun-loving boy who — on September 23, 2014 — was diagnosed with an inoperable brain tumor called diffuse intrinsic pontine glioma (DIPG). Three days later, he spent his 4th birthday in the Coach Carr Unit of Mott Children’s Hospital in Ann Arbor, Michigan. The Coach Carr Unit is named after Chad’s grandfather, former University of Michigan football coach Lloyd Carr.

Chad would undergo 30 rounds of radiation at Mott and then participate in a clinical trial at Memorial Sloan Kettering Cancer Center in New York. He bravely fought for 14 months before gaining his angel wings on November 23, 2015.

Numerous stories were written about Chad, including articles from Today and ABC News. Chad even got his own superhero theme song thanks to his friends Ariel, Zoey, & Eli. All of this has brought much-needed awareness to this devastating disease.

It is important for us to remember Chad and why he was special because it pushes us to continue fighting in his honor.

A family friend came up with the slogan #ChadTough as a way for people to show support for Chad. Word of Chad’s fight spread quickly and continues to this day as the ChadTough Defeat DIPG Foundation.

Chad’s World

If you want to understand who Chad Carr was, start with his favorite color: orange. He didn’t choose it randomly. He picked it because his big brother Tommy said it was his favorite. That says a lot about Chad. He adored his older brothers, CJ and Tommy, and he often shaped his world around theirs.

Chad loved music and dancing, especially if a song included the word “butt!” That’s life with older brothers. His laugh was contagious, and his cousins Drew, Sydney, and Casey felt more like sisters than extended family. Chad’s world was always full of people who loved him.

His food preferences were as bold as his personality. While many kids stuck to the usuals, Chad loved tofu, miso soup, olives, peppers, and pickles. Pizza was high on the list too. He tried the famous slices in New York, but nothing topped a bacon and olive round from Pizza House in Ann Arbor.

Chad found joy in the little things: stickers, crafts, hot tubs, Paw Patrol, Blaze, and “would you rather” questions. He loved helping his mom cook and playing sports with his dad. He dug for worms, laughed with his best friend Cooper, and had a soft spot for Bubba, Nini, Chuck E. Cheese, and just about every holiday on the calendar.

He dreamed of becoming an animal doctor. His two stuffed dogs, Barley and Frederick, were his constant companions. When Chad was diagnosed with DIPG, his neighbors wanted to grant him a wish. Chad didn’t hesitate. He wanted a dog. His family hesitated when he announced the name, but he was sure. The dog would be named Tootie.

Chad filled five years with more love, humor, and light than most people experience in a lifetime. His spirit lives on in every memory and every effort to bring hope to other kids just like him.

Carr Family

“When Chad was diagnosed in 2014, we were given no hope. But now, because of the strides in research, change is happening. Although the miracle we wanted was not realized, we do feel Chad is at the center of a miracle in the making.”

Tammi Carr, Chad’s mom

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