Sharing Data: How to Help Research

Children’s Brain Tumor Network (CBTN) is a collaborative multi-institutional cooperative research program dedicated to the study of childhood brain tumors. Their aim is to advance therapeutic development through the collection and rapid distribution of specimens and data via open-science research platforms for real-time access and use by the global research community.

Gift from a Child (GFAC) is a program whose mission is to increase postmortem pediatric brain tissue donations through advocacy while educating families enduring the loss of a child. GFAC tissue navigators are trained to companion families through the donation process. They will answer your questions, and should you choose to donate your child’s tissue, they will coordinate all aspects of the donation. GFAC has formed strategic partnerships with researchers and medical providers to accelerate breakthrough cancer research, improve treatments, and ultimately CURE childhood brain cancer.

xCures is a platform that takes complicated medical information from patients’ records and turns it into structured data suitable for analysis and review. This helps patients and their oncologists make better and more informed treatment decisions.