Kevin is a spunky, articulate, and creative 9-year-old. In November 2023, Kevin was diagnosed with DIPG, leaving his family’s world shattered and full of uncertainty. Seeking guidance, Kevin’s mother turned to the My DIPG Navigator program, which offers free, one-on-one support for families who’ve been dealt a DIPG or DMG diagnosis. Kevin’s journey has been a challenging and emotional roller coaster, but he and his family are holding onto hope.
Our nurses bring help.
We offer dedicated 1-on-1 support for families battling DIPG.
Our research brings hope.
We directly fund the most promising, innovative research.
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The perception of time can be altered by four simple letters… DIPG
Time is not on our side with a DIPG diagnosis. We need to give hope to future families by funding game-changing research now.
Our Founding Families
After the devastating loss of their sons, Chad and Michael, the Carr and Mosier families joined forces to defeat DIPG.
Our Family Partners
We welcome the help of families who want to honor their children by joining us in the search for a cure for DIPG.