RESOURCE LIST

ASSISTANCE FOR FAMILIES WITH DIPG

 

The ChadTough Defeat DIPG Foundation dedicates the funds it raises to DIPG research for a cure for this devastating disease and does not provide financial assistance to families.  We are grateful for the many organizations that do the important work of helping families facing a difficult DIPG diagnosis.  The following list is a starting point for some organizations that may be able to help.  Please note that we have not independently verified these organizations but provide this list as a starting point resource to help you identify potential resources.

 

A Kid Again

We are a not-for-profit serving families that have a child with a life threatening condition.  The condition might be cancer, Cystic Fibrosis, Sickle Cell, Down Syndrome, diabetes, Muscular Dystrophy and more. We provide cost-free, year-round, fun filled events we call adventures for the entire immediate family until the child turns 20 years of age.  Our adventures consist of adventures in your home state and might include, theme parks, zoos, sporting events, holiday party and more.  We also have our Adventure in a Box which are activities the family can do at home.

 

Angels of Hope (MI only)

Angels of Hope is an organization with a single mission: to provide emergency financial assistance and other programs to families in active treatment for any type of cancer, anywhere in Michigan. We ensure every dollar does the most good, with 98% of donations and proceeds directly benefitting these families.

 

B+ Foundation

The B+ Foundation® is committed to emotionally and financially assisting families of children with cancer, so you can focus on helping your children get well. To receive financial assistance from us, your family must meet the following criteria:

  • Have a child diagnosed with cancer under the age of 21
  • Need assistance with expenses directly attributable to your child’s diagnosis
  • Assistance may be granted one time in a 12-month period/2 times overall
  • Receive treatment at any U.S. hospital

 

Cory’s Crusaders

Our mission is to provide financial assistance to families with children fighting Brain Cancer and to fund much needed research. By raising funds and awareness, one day the news no one wants to hear could come with a glimmer of hope, longer life expectancy or a more positive outcome. Our goal is to help families focus on what matters most, their child.

 

Ethen Richardson Foundation (SC & GA applicants only)

The mission is to continue sweet Ethen’s legacy of giving by providing financial and emotional support to the families of seriously and terminally ill children while also serving as witness to our Lourd and Savior.

 

Cancer Financial Assistance Coalition

CFAC is a coalition of financial assistance organizations joining forces to help cancer patients experience better health and well-being by limiting financial challenges, through:

  1. Facilitating communication and collaboration among member organizations;
  2. Educating patients and providers about existing resources and linking to other organizations that can disseminate information about the collective resources of the member organizations;
  3. Advocating on behalf of cancer patients who continue to bear financial burdens associated with the costs of cancer treatment and care.

 

Clayton Dabney Foundation

Gifts, last wishes and financial assistance which will facilitate quality of family life and create everlasting memories.

Clayton Dabney’s criteria for request approval includes:

  • Patient must be diagnosed with a cancer or cancer related illness.
  • Patient must be terminal and in the last stages of their illness.
  • Patient must be 18 years old or younger (however, if child is 21 or younger and was diagnosed with their cancer before turning 18 and is still being treated in a pediatric facility, the patient may still qualify)
  • Family must qualify as low income or financially needy PRIOR to diagnosis. This should be determined by referring hospital or hospice care team before submitting request. Questions on this should be directed to Lauren Cockrill.
  • Patient must be referred by a hospital or hospice care facility. Families of the patient cannot submit an application.

 

Emily’s Kids Foundation (NC only)

Emily’s Kids Foundation, Inc. is a nonprofit that supports North Carolina families dealing with childhood cancer. In particular, we supply families with gift cards to offset some of the costs of visiting a child in a hospital. This includes parking vouchers, gas cards, and gift cards for food.

 

Friends 4 Michael

The mission of The Friends4Michael Foundation is: to support children like Michael and their families, to keep alive the memory of Michael and his spirit, to increase awareness of the devastating effects of brain tumors on afflicted children and their families and to continue to “Fight for a Cure” for this horrible disease.

The primary effort of the Foundation is to provide assistance – including financial – to families across the country whose children are fighting a brain tumor. The Foundation also provides support for directed charities which supported Michael in his memory. Additionally, the Foundation continues to support the Race for Hope, which we call “Michael’s Run” because it was Michael’s way of giving back. Funds raised at this run support brain tumor research.

 

Friends of Scott (Southern CA only)

The funds raised by Friends of Scott help to continue researching a cure to this devastating disease and to directly help child cancer patients in need of financial assistance. We make sure our commitments and goals benefit Children with Cancer and to the research of cures in childhood cancer.

 

Gabriella’s Smile Foundation

We give families the support they need when facing a Diffuse Intrinsic Pontine Glioma (DIPG) diagnosis.  We also provide resources and support for families that have a child diagnosed with cancer by taking a holistic approach to help in all area including mental and social factors affecting the entire family.

 

Hogs for the Cause

Hogs for the Cause exists to fill the void between what families can afford and what insurance provides.  Hogs provides financial resources to pediatric brain cancer patients in all fifty states.

 

Isaiah Alonso Foundation (KY and GA)

The Isaiah Alonso Foundation financially assists deserving families of oncology patients in Kentucky and Georgia.  The Foundation provides grants to minimize the financial hardship that is directly attributable to the child’s illness.

 

Love for Liberty Arnold-Simon DIPG Foundation

Provides services to bereaved DIPG families such as sibling pen pals, meetups & retreats (in non-pandemic times), and we’re about to launch a sibling scholarship program.

 

Max Cure Foundation

Our programs fund research for new and less toxic treatments for children with cancer, support families in need of assistance during their battle with childhood cancer, and raise awareness to the needs of those fighting pediatric cancers.

 

Mission4Maureen

Mission4Maureen provides financial assistance to families who are burdened by the staggering cost of brain cancer treatment.

 

N8 Foundation (Only CA)

The N8 Foundation is formed to help fund research, promote awareness about DIPGs and other forms of pediatric brain cancer and to assist families with children who are currently battling this horrible disease.

 

Reflections of Grace Foundation

  • Provides financial, emotional, and educational support for children and their families affected by pediatric brain cancer.
  • Raises awareness of all types of pediatric brain tumors, with a particular focus on Diffuse Intrinsic Pontine Gliomas (DIPGs), or Brainstem Gliomas.
  • Joins with other like-minded organizations in educating, aiding and funding the search for a cure for DIPG and other forms of pediatric brain cancer, in the hope of curing all cancers.

 

Smiles for Sophie Forever

The foundation is dedicated to honoring Sophie’s memory by providing financial support to those families burdened by pediatric brain tumors, increasing global awareness not only of pediatric brain tumors but the serious lack of funding for this research and to provide financial support for St. Jude, where Sophie was treated, and other viable organizations committed to the treatment of pediatric brain cancer.