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Our kids inspire us to fight to defeat DIPG.

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July 13, 2006 – November 29, 2012

Diagnosed: November 29, 2011

Written by Alyson’s family

Alyson Nicole Usher was born on July 13, 2006.  She was a very happy and outgoing child, full of life and always wanted to make sure everyone around her was happy. She had two older brothers, Nick and Noah.  Aly’s favorite colors were bright pink and sunshine yellow.  She was full of sugar and spice, and her Pap often called her sassy and classy.  Her Nunnie told her she was the end of the rainbow.  She could be the princess or the tomboy.  She participated in dance and gymnastics, but also loved softball and found ways to compete with the boys.  Her family called her “Crusher Usher” because of her competitive spirit.  Alyson was wise beyond her years, and was often called an old soul.   She LOVED everything Hello Kitty, but was most comfortable in Puma running outfits.  She enjoyed singing and dancing and often would pretend she was a star.  She liked glitter tattoos of peace signs and butterflies, and enjoyed making any kind of arts and crafts.  On November 29, 2011 Alyson was diagnosed with DIPG, a fatal brain cancer with no effective treatment, and was given 6 to 9 months to live.

She endured 6 weeks of radiation without anesthesia, several operations, needles and heartaches. She lost the ability to walk and talk. In June of 2012, we were told that the tumor was advancing and she began hospice care. It would get very difficult to understand what she wanted, and very frustrating knowing we could not help her in any way. For a year she watched her brothers, cousins, and friends run and play and have fun, while she slowly declined. Despite all of her suffering, her spirit remained strong. Through it all, Aly never complained, never asked why. Her faith was so strong, she faced each day with courage, bravery and trust.  Alyson is our inspiration.  We were blessed to spend every moment we could with her. She taught us what it is to love, trust, and believe.

On June 28, 2012 her oncologist gave her just 8 short weeks to live.  True to Aly form, she survived 5 months and 2 days longer than the doctors had said. Alyson took her wings in the comfort of her home, tucked into her bed with everyone she loved surrounding her on November 29, 2012. Even though she is no longer with us, her legacy will never be forgotten, and we will continue to work on her behalf until a cure is found. We love you Alyson Nicole Usher.

What is DIPG?

DIPG is a devastating and aggressive brain tumor typically found in children.

What is ChadTough Defeat DIPG?

Learn about our founders, mission, and impact.